Taking Care of God's Birds

Early this morning while waiting for the school bus, Jonathan and I were bird-watching from our deck. He took great delight in spotting them, and trying to decide what kind they were, and whether they were male or female. We threw out some bread, and different birds took turns pecking at their breakfast. Jonathan was very quiet, only speaking in a whisper as he said, “I feel so special that God let me take care of His birds this morning.”

Sweet boy with a golden heart.

The more I pondered his statement, the more meaning it had to me. Not only for my son to express his gratefulness to God, but also that he was showing signs of a caring person, not just looking out for his needs but the needs of God's creatures.

We should all be “taking care of God's birds”. Perhaps the care you show your “bird” is patience as you care for your son or daughter on the spectrum, or helping an elderly relative. Maybe it is making cookies for a lonely neighbor or teaching a Sunday school class. We need to look for the “birds” God sends to us and do our part in taking care of them.

Perhaps, at least in my life, every time I see a bird, it will be a reminder to me.

Noticing, caring and serving.

God's lessons from the mouth of my son.

You can read more about our AWEtism experience by clicking: 
AWEtism....Life on the BRIGHT SIDE of the Spectrum

That Breaks My Heart

Ouch. That hurt...

I was trying to get some work done on my laptop and repeatedly asked my son, Jonathan, to lay at the other end of the couch. He was trying to snuggle, but he has a tough time sitting still, so it was more like cuddling with a windshield wiper. Somewhere around the 20th time I asked him to move, my request had a certain "tone" of OBEY NOW!

He looked at me with a very disappointed expression and replied,

"Mom, you really break my heart when you don't want me next to you."

Oh, baby... I'm so sorry.
Nothing is more important than taking time to let you know you're loved.
Nothing.
Not paying bills or
Responding to emails or
Reading blogs or
Teaching an Online Course for UCF or
Ebay or
Facebook.
Forgive me for acting like the most important thing isn't the most important thing.
When you were 3
You did not want to cuddle or hug.
I prayed that you would learn to enjoy being loved.
Now you do
And I tell you to move away.
Shame on me.
Forgive me, honey.
Someday, you might think you're too big to cuddle.
So I will remember to cherish
Every hug
Every kiss
Every moment
Every day.

You can read more about our AWEtism experience by clicking: 
AWEtism....Life on the BRIGHT SIDE of the Spectrum

Running With A Torch

"Running with a Torch"

Where does your imagination take you when you read that?

I'm sure you think of the beginning of the Olympic games, where Running with the Torch has become a historic event. Those who are chosen feel privileged as the throngs of people cheer with anticipation as our athletes seek to push themselves to reach their dreams. Hard work and endurance are awarded by bronze, silver and gold.

Indeed, I beheld with my own eyes, Torch Running of a Different Kind.

While relaxing watching TV with my husband, and my son was content playing on the computer, I easily could have missed my torch bearer as he whooshed up the stairs and down the hallway. My "Mommy Gut Instinct" was alerted, as I summoned my son. He did not immediately appear, which means I must heed the questions racing through my mind.

"Jonathan! What is going on? What did you have raised over your head? And where did you put it?"

I sure was hoping that what I thought I saw, was not really what I saw. But alas, the confession only confirmed my vision.

"Well, Mom, see...there was a problem with the potty downstairs, so I got that thing from the upstairs bathroom, and took care of the problem. It's fine now, really...there isn't much damage to the bathroom. I did good."

Yes...the "torch" indeed was the Plumber's Helper from the upstairs bathroom. And the dripping of water all through the den and up the stairs and down the hall, not to mention IN my son's hair was from the "problem with the potty".

This reminds me of the hundreds of times Jonathan has taken it upon himself to "fix" a problem. It really doesn't naturally occur to him to ask for help. Never has...not sure it ever will, but I can hope. After a gazillion times of Mom and Dad saying "Just ask" perhaps one day he will.

So I have learned to rely on MGI (Mommy Gut Instinct). When I "sense" something isn't quite right I become like a secret agent on an espionage mission. Inevitably I find my son immersed in some plan or project I would object and forbid. (Notice the word "immersed" was used. No pun intended.)

The surprise his time, however, he DID fix the problem, and there was little evidence of a disaster.

Except of course for the trail of potty water up the stairs and down the hall.

Anyone need a plumber? I know one who will work for a bag of Skittles. : )

The Details - Jonathan's Perspective

While getting ready for school, Jonathan said something very profound.

"Mom, the God who created the whole entire universe made me. I think He cares about details."

At first I laughed. Then I realized how truly significant this thought process was for him. For my precious son is autistic, and it is hard for him to grasp that anyone could feel or think differently than he does. But, at least for a brief moment, he saw him self as a "detail" God cared about....not the center of God's creation. His horizon is becoming wider.

He's not belittling himself, just putting things in perspective.

Yes, Jonathan...God does care about the details. : )

A Dozen Thoughts - What Every Parent of an ASD Child Wished Their Child's Teacher Knew

1) It is never a shock that my child has behavior issues. I live with him. I know.

2) Tell me 2 good things about my child when you have to tell me something bad. Think of it as a sandwich. Good/Bad/Good.

3) Let me know you like my child.

4) Realize that I often feel guilty that he is in your class, because I know he takes up so much more of your time and effort than typical children do.

5) Even though my child has non-compliance issues, I am not a wimpy parent. I work harder, correct more, brainstorm more, set up reward programs, try to be diligently consistent, read more, worry more than parents of typical children.

6) Include me in on decisions about my child.

7) Ask me what works at home.

8) Try to go easy on the homework. We have enough struggles around here! Understand, if you assign homework we may or may not be able to get it done.

9) If my son says the tag in his shirt bothers him, cut it out, you totally have my permission. If you don't cut it out, plan on a bad day.

10) Remember that my child is a few years behind socially and emotionally. He may need help remembering to bring home jackets and lunch boxes. I have extras, but when they start to pile up at school, send them home.

11) Try to use my child's strengths in the classroom if you can. It will make his self-esteem soar.

12) Applaud me for getting him to school on time. You have no idea...

The Funny Side of Autism

People with autism tend to take everything literally, which can make for difficult times. You have to explain every Idiom.  But it can also make for humorous moments...

Jonathan comes to me:
"Mom...I'm soooooooooooo hungry. Can I have a snack?" 
(It was 4:45, and if he had a snack at that point, he would never eat dinner.)

So, I said "No, honey, dinner is right around the corner" 

He immediately grabbed my hand and replied, "Well come on then. Let's take a walk around the corner!!"

Gotta love it!

2 Birds + 1 Stone = Poor boy

There are some things that, if I did not have a child with autism, I would never experience. Some are not fun, but most give me new perspectives, unique and often humorous.

Last night while out with my son, I mentioned a few things that I needed to do, saying that I was going to "kill two birds with one stone"

A look of horror came upon his face.

"Mom, you? You're going to kill 2 birds with a stone? I thought you loved birds? Why would you want to kill them?"

Before I could help him understand, he was crying for the twin precious feathered creatures that were going to meet their Maker at his own Mother's hands.

For those of you who don't know me...let me inform you that I have trouble with the idea of stepping on a bug. Everyone around me knows that to me life is sacred. Ask my husband about my rant on air guns and how a pellet may never touch a living thing. Well...you get the picture.

To my son, the thought that Mom was going to kill not one, but two birds, and that she was confessing she was going to do it prior to actually committing the act was more than he could handle.

All this is to say, people on the spectrum have a very difficult time with idioms. They think in concrete terms. As Temple Grandin puts it "they think in pictures". So he vividly imagined me extinguishing two helpless birds.

I explained to him the meaning a few times. That it didn't really mean I was going to kill any birds, it was just that I was going to be able to get two things done at the same time.

Did he understand? Yes, he did. Finally. Pshoooo.
We get home, he's ok. No more tears. 

Getting ready for bed, he brings me the empty box from his new shoes. He handed it to me and said, "This is for the birds, so you can bury them when you're done."

Bless his heart. I guess I need to choose my words more carefully!

The Butterfly Boy

When my son was young, it seemed as if autism was a monster controlling him. It was a scary time, to say the least. We were not given a great prognosis about his future, at best, his potential was unknown. Then, I noticed he became intrigued by butterflies, literally dancing with glee as he watched them. I remember once, him crawling inside a net basket, and as he came out he "flew" around the room. He was enacting a butterfly coming out of the cocoon! All this was prior to him having a single word he understood or could verbalize. Amazing.

At one point, there was this "aha" moment for me as I realized that a butterfly was very symbolic about my son. In 2 minutes flat, I wrote the poem below. I wanted to share it, and hope you enjoy!

The Butterfly Boy

copyright © 2004 Donna M Cooper

My son, my love

Once trapped inside a cocoon, alone in the dark

Yet, One more powerful than I was working a miracle

While I feared you would forever remain aloof, distant

The Creator of all could see the day when you would metamorphose

You broke from your small abode, no longer crawling

But fluttering in the sun, soaking up the rays

Bringing delight to all who would stop to gaze and reflect on the wondrous transformation

My son, I see your passion for the vibrant winged insect and I ponder...

Do you love them so, because they are so much like yourself?

You too were once encased, enclosed, hibernating

Now, you've emerged even more beautiful than I could imagine

Full of life, full of energy, full of love

Fly my precious butterfly, enjoy the world around you

There is so much for you to learn

Thank you for coming out of your cocoon

I am awed at the wonder of it all

And so very blessed to behold your beauty

Victory in the Lunchroom

There have been some issues brewing at Jonathan's school. It came to a place that it needed some Mommy intervention. I prepared visual supports and updated a stagnant token system to help my son become motivated to participate and cooperate. I went to the school  to share the new plan with the teacher. I ended up staying until noon, helping Jonathan to get back on track with our expectations.

The new supports helped Jonathan to change some of his behaviors and attitudes, and the morning went amazingly well. I was so proud of him!

One challenge he has had all year has been the lunchroom. He gets easily overwhelmed with the noise level and smells, and he would often have strange and unusual behaviors! The Resource Teacher decided to let Jonathan pick 2 friends each day to have lunch with, and eat at a smaller table. Since that decision was implemented, things have been peachy! (All I knew was that there were no longer bad reports about the cafeteria, but did not know the new strategy.)

As the children were lining up for lunch, the teacher reminded Jonathan to pick 2 friends. ALL, not a few or some, but ALL the children raised their hands and exuberantly asked Jonathan to pick them to sit with.

"Pick me!!! Pick me!!!!" they all begged. Jonathan picked 2 boys for Monday, 2 different boys for Tuesday and then said, "I guess I need to give some girls a chance Wednesday." HA!!

It was so comforting to me to see that all the children clamoring to spend time with my son! And I think it helps Jonathan's self esteem to know that all the children want to be his friend.

While we were at lunch, Jonathan interacted appropriately. Laughed, listened, asked questions of his friends and stayed on topic, even when it was a subject he wasn't so interested in. I was impressed at his ability to interact and converse in a much more sophisticated way than I've observed in the past.

It was a very good day!

Gentleman Training 101

I've been working on Gentleman Training 101 with Jonathan.

Teaching him to open doors and wait, and what to say after he is thanked.

 

It is working!

 

Mike was sick, so he did not go to church. Only Jonathan and I went. Jonathan held the door open for me as we were coming into our church, I thanked him, to which he replied, "My pleasure," With a sweet voice.

 

I had no idea there was a group of 10 or so ladies standing in earshot. There was a simultaneous "awwwww" and then they clamored to adopt him, with offers of candy.

When we got on the elevator Jonathan said, "Man, this gentleman stuff has great benefits!"

 

That's my boy!

I AM SUPER MOM!

You don't often hear me do this, but for this moment I'm going to be glowing in the dark, neon sign kind of thing, about my glorious accomplishment. Please excuse this brief moment of expressing the joy of my success.
 

There is about $1,500 worth of dental work that needs to be done in Jonathan's mouth. 3 teeth that need "baby" root canals and crowns and several other fillings. We've been trying to get this done since the spring, with no success. Been to 4 dentists. After shunning the first one due to outrageous pricing ($1,100), we go the the next and he made the first look like the Blue light special at K-Mart. This is just the dentist portion of the bill, not including hospitalization, since both these guys refuse to do the work in office. Then we find out that Jonathan's insurance is going to be having a dental plan. And it's coming soon! This IS actually dental insurance, with only a $15 co-pay. Finally in June we we get the word that the dental insurance is in effect!

However the kicker is actually finding someone who takes the insurance. We did. Jonathan had his teeth x-rayed and cleaned and an appointment made for treatment. We had to cancel that appointment because Jonathan was sick. When I went to reschedule the appointment, the office staff told me that the dentist had decided he would not be able to work on Jonathan. At all. The end. They just will not see him because he has autism PERIOD.

Back to searching again, and I find a pediatric dentist in Knoxville. This dentist is nice and, unlike Dentist 1 and 2, he is willing to try to do the procedures in the office rather than the hospital. Another issue, because way back when Jonathan was 2, he had a terrible reaction to anesthesia, so I really do not want him to have anesthesia (like put under) for baby teeth!

Finally it was D-Day (Dentist Day...hahaha). I talked, prepared, cajoled, bribed and begged my son to behave. To do what the dentist asked, when the dentist asked. To be the best most self-controlled he's ever been. That it was of utmost importance. A new Lego set was in the balance.

Jonathan goes back to have the work done. I hear him loudly conversing with the staff. I ask the girl at the front desk to let them know that I was available if they needed me. Twenty minutes later I see the dentist in the office. He lets me know that they have to do the work in the hospital. That there is no possible way he can work on my son's teeth in the office. Hospital is the only way.

I ask him if I can go back. He lets me know that I'm welcome to, but he cannot do anything more for Jonathan in the office. I ask again and basically plead for him to give it another chance. To let me be with Jonathan during the procedure. He reluctantly agrees, but is sure it won't help.

I was able to help Jonathan, to sit by his side and help him to find self control. Not only did Jonathan cooperate, but he came through with flying colors, and the dentist is willing to do the rest of the work as long as I'll come back with j.

Hallelujah! I don't often brag about my ability to work with my son, but today I deserve a prize. I guess God knew what he was doing when He picked me to be Jonathan's Mom.

When the going gets tough....just call Mom!

Remembering the Journey

I recently received an email from a man who's son was just diagnosed with autism and hyperlexia. He asked me about my son. The paths we've traveled. Therapies, education and programs we've experienced. What has helped? What we'd do differently.

PLEASE NOTE: Every child is different. I feel God guided me to the things that worked for Jonathan. I look at all the therapies available as "tools" to help our kids, and I am so thankful that we have a toolbox full! If something isn't working... there's another one to try!I IN NO WAY think this is the magical cure all for every child with autism. But the person who emailed me asked me specifically what we did with Jonathan...and this is our history. 

When I responded, it wasn't difficult to remember each year of Jonathan's life. The amazing people God brought our way to walk alongside us, to join us for a year or two. Many of them have left indelible footprints in our hearts. How can you not appreciate those who go beyond the call of duty for your child?
I thought I'd share his letter and my response with you. Perhaps you may glean something from our journey you can use on yours.

Donna,

I'm in the beginning of my journey with my son. He is 3.5 years old. Thank you for replying back.

I'm interested to know how long you've been on the journey? If you can change something during the journey, what would that be? Most of all, how is your son?

Thank you,
 
Hi E,

How long have I been on this journey? Forever! So it seems. Jonathan just turned 9. He is, my guess...2 or 3 years ahead of his peers academically, and about the same behind socially and emotionally. Though the exceptions to the "ahead" is handwriting. And there are often exceptions to the "behind" when he will show compassion or amaze us with a spark of maturity.

We kept him in K for an additional year. Partly because it was his first school year as an included child, and had a horrible no good very bad teacher the first half of the year, then transferred to the most extraordinary exactly what he needed teacher for the 2nd half of the year. They bonded (ME TOO!) and we became a team to help Jonathan be all he could be (to steal a slogan). Thank you Michelle!

I don't really think there is anything we would have done differently. Nothing major, anyway. I can tell you what we did, not that there are any duplicate children...but this path (even in my ignorance) seemed to be the precise set of things Jonathan needed to keep growing and making progress.

This might be a really long letter.

Jonathan was diagnosed (incorrectly) with a hearing impairment at 11 months old. Began Speech therapy. He was not babbling at all, did not understand a word we said, did not point or wave. We knew he was smart because he was already a whiz with puzzles and shapes, but nothing auditorally made any sense to him.

While he was in speech, they noticed a lack of balance, and no idea of how to catch himself if he went to fall, so he began physical therapy at 13 months, and OT soon there after for sensory issues.

At 16 months old, after his last set of immunizations, he disappeared into his own world. I honestly thought they would tell me my son was autistic when he was 11 months old, and received hearing impairment with a thankful heart. Better to be hearing impaired than autistic! But, they were wrong, and I was right...at 18 months he was tested by 4 psychologist and a few others, and the compiled and averaged score on his first ADOS was 1 point away from severely autistic.

At that point we enrolled him in UCP. It was a preschool for children with special needs. Because he wasn't learning language, at 2, they introduced PECS to him and he picked it up immediately. I was cautious, because, although I loved the fact he could grab a "Popsicle" picture and get what he wanted instead of screaming, he still wasn't talking or even understanding any words. (http://trainland.tripod.com/pecs.htm and http://www.polyxo.com/visualsupport/pecs.html)

I took a course called Hanen, which was amazing, and really gave me a handle on how to use language so my son could begin to understand. I highly recommend finding a place to take this, if you can. (http://www.hanen.org/web/Home/tabid/36/Default.aspx)

I also bought a series of videos (now they are DVD's of course) called Baby Bumble Bee. Awesome, wonderful, excellent investment! (http://www.babybumblebee.com/)

At 18 months he was in the toddler class at UCP 3 full days a week, receiving Speech and Language, OT and PT 3X a week, then we also got approved for Oral Motor Therapy and added that 2X a week. (He would not transition to table food) There we found the miracle Speech therapist who worked wonders with Jonathan. Somehow, Barb and Jonathan made a connection, and he learned so much from her. Sweet Barb...we miss you!

It was also there we realized he was reading. He was 2.5 and obsessed with numbers and the alphabet, preferring them over anything else. Instead of coloring with crayons, he would "build" letters and numbers with them. His first words were of course A B C.... and 1 2 3... "mama" came much later.

After evaluating my son, and taking into account all his strengths and weaknesses, I felt that his #1 core deficit was his lack of desire to be social. So many of his issues were due to the fact that he did really notice people or desire relationships. So I chose therapies that would cause an effective change in that area. Why would he want to talk, if he didn't want to share his thoughts? Or know what someone else was thinking or feeling?

So I chose to learn and implement a Floortime approach at home. It took months, but eventually I began to see changes. He began to interact with me and seek me out to play.(http://www.icdl.com/dirFloortime/overview/index.shtml)

All the while his interest in letters and numbers and words grew. Before he was 3, his favorite thing to do was matching pictures with words. I made file folder games to enhance his comprehension and reading ability. I made 5 folders with 10 - 20 pictures each of things he was familiar with. (Colors, numbers, toys, food, days of the week and months of the year) there were almost 100 words I was planning on teaching him. I had Velcro words for him to match the word to the picture. When I showed him the first folder, I watched with fascination as he matched 18 out of 20 ON HIS OWN! He was less than 3, I know, because he was still at UCP. He ran about the same average with each of the file folder games I had made.

I have no clue how he read. No one taught him. He just knew. I remember as a baby, how he would cry when I would shut a video off before the credits rolled. I know now he was already decoding.

At 3 he went to public school in and autism placement (8 - 3; 5 days a week) with a pull out to a preK language impaired class for 2 hours a day. He was beginning to talk. Only 1 word at a time, usually a color or number or letter; but also labeling. (funny thing was they had tried teaching him sign language, I had too, he never was interested, and he never ever signed...until he talked. Then he would often pair the sign with the word!)
I also developed my own way of teaching him language.
He had echolalia, both immediate and delayed. He would parrot back a question, knowing he was supposed to say something..but not sure what. I would say, "How are you?"he would say, "How are you". He would also quote videos, complete with the exact intonation. But he did not really have spontaneous language at that point.

After I realized he could read, I would use that! GOLD MIND!! I would right the answers to questions on index cards. I'd ask a question and hold up the card...BINGO! This is how my child learned to answer questions.

Soon it became much more than "Fine" (how are you?)
It evolved to reading sentences. We'd play games and he would have to say (read) "Mom, now it is you're turn" before I would take my turn. Or "Please give me the dice" before he could roll. All read off of index cards.

He still could not but 2 words together spontaneously, but he was learning language.

At his 4 year old IEP, one of the goals was to put 2 and 3 words together to make a sentence.

The summer before he moved to a VE (Varying Exceptionalities) 4 year old PreK class we found a church who accepted him into a summer camp program. He went 3 days a week, and was with typical children. His language exploded that summer! He surpassed the 2-3 word phrases before August, and was often speaking in sentences. We were delighted.

By 4 he was hooked on Dr. Seuss, and read everything the man wrote. The spring he turned 5 he noticed that children existed! Thus began his social life!

Flash forward. Jonathan just turned 9. He's been included in a General Education Classroom since he was 5. He is very bright, and somewhat bored in school. He always amazes us with his knowledge of subjects (he reads all the time, and remembers almost everything he reads) He is years ahead in math as well.

He is still behind emotionally. He sometimes gets "stuck" on thoughts and ideas he has, or something he really wants to do, it is difficult for him to "move on" without help transitioning. He is 100% fully conversational. He is very social, and just had a fantastic birthday party that NO ONE would have ever guessed that he was autistic.
My fingers are sore. LOL. I guess I got a bit carried away.

Feel free to ask me anything you want, if you have specific questions. As you see, I don't have trouble answering email. : )
Hope this help you as you consider your options. May the Lord bless you with wisdom and insight. I can promise you...it will be an amazing journey!

Jonathan Got Published!!

A LONG time ago I remember receiving an email, and they asked for poems, stories and artwork from people with developmental disabilities. I sent something in Jonathan had "written" (he said it, and I typed it.) Today I get a book in the mail, and see that my 8 year old son got published!!! How cool is that?

The online edition is a PDF file you can see. His poem is on page 12 (though you might enjoy reading and looking at the rest of it!)

http://www.icdl.com/documents/GLIMPSE-1308.pdf

But in case you can't access that link, here is the poem in all it's glory!

I Love Butterflies

I love butterflies most of all.
Ladybugs crawl
Moths fly
Worms slither
Spiders tiptoe
And grasshoppers jump
But
Butterflies DANCE and are free
Like me.

Jonathan Ryan Cooper

Age 4

Autism/Hyperlexia

Practicing Surgeon - Patients Beware!

Jonathan and I were talking about what he wants to be when he grows up. His list has included: Monster Truck Driver, Nascar Driver, Pet Trainer, Video Game Designer, Astronaut, Book Collector, and Paleontologist to name a few. Then I mentioned how being a Doctor might be something he should consider for a few reasons. One is, it is a "helping people" job and another is they make quite a bit of money. 

That woke him up! "How much, Mom?" "Oh, more than $200,000 a year." That settled it! Dr. Jonathan Cooper, MD, Surgeon has emerged. The boy has spent every waking moment practicing. Drawing pictures of people, "opening" different areas of their body, and closing them with various types of sutures, including (but not limited to) tape, bandaids and safety pins. Here are some examples of his victims...ah, I mean patients. They all survived and their families were very pleased.

 

I love how my son is progressing. He is thinking of his future, dreaming of his career, using his imagination, showing creativity. A few years ago I found a sticky note in my son's permanent school files. It said, "Problem with mother. She thinks her son will be in general education classroom someday." Obviously, whoever wrote that never intended for me to see it, but neither did she take into consideration how love, prayer and therapy can create infinite possibilities for our children. My goal is not to mold my son into a surgeon, but to help him dream dreams of limitless potential. I'm reminded of an old children's song,

I am a promise, I am a possibility  

I am a promise, with a capital 'P'  

I'm a great big bundle of potentiality. 

I am learning, to hear God's voice  

And I am trying to make the right choice  

For I'm a promise to be anything God wants me to be.

What a great theme song for any child! Because of the Hope God has given us. Our children have such vast potential and promise. We should never limit our view of what they may achieve!

It's not Autism...It's AWEtism!

Long ago, when my son was turning 4, we witnessed some dramatic changes in his life. We witnessed God at work, reshaping the way our son related to the world. While he was once alone on his island, he was beginning to allow people to cross the bridge and once in a while would even choose to cross that bridge into our world. I would often overflow with thanksgiving for the miracle I was viewing. At the end of the school year, I wrote this poem for Jonathan's teacher, who was so instrumental in helping us reach our son. People who read this poem encouraged me to make T-shirts with the message. They told me the poem gave them hope and helped them to see autism from a different prospective. The message is original and positive. Eventually I opened up a little online store. If you're interested you can visit it at www.cafepress.com/awetism.

I'd like to share the poem with you:

"It's Spelled Wrong"

A mistake has been made

The word doctors and neurologists

use to diagnose our children is autism

but it should be AWEtism

Just think...

Awe at my son's progress

Awe at each accomplishment

Awe that we've been blessed to be part of a miracle

Awe to see God's hand at work in my son's life

Awe to meet such wonderful people

Awe for each little step in the right direction

Awe for the love I never knew I had

It's not Autism, it's AWEtism!

Copyright © 2003 Donna M Cooper and The AWEtism Shoppe. All Rights Reserved.

www.cafepress.com/awetism

The Question...(every Mother who has a Child with Autism Asks)

I probably don't need to state the fact that my 10 year old son has autism. But if you are new, you might not know, so now you do!

Jonathan has autism. Though most people who meet him would never suspect. He is social and likes people. Upon first encounter, you might think he was just a typical kid with ADHD tendencies.

I credit LI, EI and PI for the radical changes in my son (The Lord's Intervention, Early Intervention and Parental Intervention) It has, without a doubt, been a team of people who have made a difference in my son's life.

But there are still *things*. He gets stuck. Doesn't want to move to a different activity or topic. Or his brain is so focused on something, he will argue his point as if his life (or yours!) depended on it. Or sometimes, he presses a "mute" button in his mind, and he will not hear you, respond to you, or even acknowledge your presence.

He can appear to be "disobedient" but honestly, most of the time the non-compliance has roots in the fact he is autistic.

This is not to justify or excuse, rather to understand.

These past few weeks, in particular, have been filled with one outburst after another. I have put my parental abilities in the witness stand, with my mind becoming a very harsh judge, while my heart is feeling the scars of the overwhelmingly "guilty" verdict. Somewhere I must have done something wrong for my child to be so _______________. (Feel free to fill in the blank with any inappropriate things we deem unacceptable in childhood behavior) So part of the problem is the fact that my son appears to be so NORMAL in looks, that people forget he is autistic.

This has become a blessing and a curse. Because without a visual reminder of my son's disability, one tends to forget he has one!

In frustration I wrote this the other day. I posted it on a few message boards. I've received many comments from other parents of children with autism. They have expressed that I have put into words what they've been feeling for years. So now, I share with you:

If Jonathan were blind, would I expect him to see?
No, I'd give him alternate ways to "see" his world. Let him touch and smell. Describe it to him. Would I apologize for him? (Can you imagine..."Oh please forgive my son for his blindness"??)

If Jonathan were deaf, would I expect him to hear?
No, but I'd provide hearing aids and therapies for him to be able to function as best as he could. I would learn to be conversational in sign language so I could understand and know my son.

If Jonathan was disabled in such a way as he could not walk, would I be angry at him that he was in a wheel chair?
No. I think I would see the wheelchair as the best way for my child to enjoy life, and be able to participate.

Why then is it so hard for me to accept the behavior issues that comes with autism? Why do I expect my son to "be like the other kids" in regards to social issues? Why do I expect him to THINK and ACT like the NT Kids? Why does it embarrass and humiliate me when he doesn't?

Would teachers be saying, (if my son was blind) "Oh, gee, you're son couldn't identify his colors AGAIN today..."
Or (if my son was deaf) "No matter how many times we play the song, Jonathan refuses to participate in music. He just will not sing, not ever"
Or (if my son was in a wheel chair) "Once again your son would not walk to the cafeteria. I mean...all the other kids his age are able to walk and carry their own trays. But he just stays in his chair..."

But I am forced to hear about all the behavior issues, almost daily, and then feel like for some reason I need to do better, discipline more, talk more, find the magic wand that will "fix" him.

Why is it different for my son, than a child who is visually or hearing or
physically impaired ?

I continue to ponder and search...

Special Thanks to Special People

Having a child with special needs has changed my life in so many ways. One thing I have come to appreciate so much are the other people that God has brought to our lives to help work with our son. They have made such a difference!

Today I want to thank them. For their love and care...for never giving up...for going the extra thousand miles...for seeing the good in my son even when his behavior tends to block the view...for realizing that he, too, is one of God's precious children...for taking time to let me know the "golden nuggets" of the day...for planting seeds...for letting God's love flow through you...

May the Lord bless you more than you can even imagine, with everything you need...and a few things you want!

Dedicated to:

Heather, Roger, Teri, Marilee, Barbara, Tracy, Melody, Michelle, Jenny, Lora, Ginny, Kim, Adam, Jeannie, Denita

I am forever grateful...

"We'll Never Forget" is a link to a short movie I made for a very special teacher. This is what inclusion can look like when it's done right:

http://www.photodex.com/sharing/viewshow.html?fl=2816498&alb=0